From time to time, we receive calls from specialists in the field who are looking for patients to provide their details or to get involved in a research project, with the aim of bettering the medical understanding of POI.
If you would be interested in participating in research, the latest research opportunities will be posted on this page.
A group of doctors led by Nick Panay, Consultant Gynaecologist from Imperial College London, Queen Charlotte’s & Chelsea and Chelsea and Westminster Hospitals, are gathering information on women with Premature Ovarian insufficiency (POI) in the POI Registry.
They are aiming to bring together health experts, industry and government to produce an international database to support the research and understanding of POI. From this database, they can work towards a better understanding of the history and treatment of the condition in order to improve overall patient care.
Details can only be registered by clinicians so if you wish to add your own details to the registry, remember to ask at your next appointment.
NB. You cannot register yourselves, but with your consent you healthcare professional can do so at https://poiregistry.net – thank you!